RESOURCES FOR CASK FAMILIES
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Where rare disease and disability communities discover and share resources. A wonderful resource for all things rare! From locating doctors, therapies, education support... this website has been influential for many rare families!
The Seizure Action Plan Coalition (SAP) began in 2020 as a labor of love between the LGS Foundation, Dravet Syndrome Foundation, and TSC Alliance. The organizations knew there was an opportunity to bring the epilepsy community together to bring attention and awareness to Seizure Action Plans for people with epilepsy.
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A Seizure Action Plan (SAP) contains tailored guidelines on how to respond during a seizure, based on the patient’s medical history. It includes health and medical information specific to the patient and helps others recognize seizures and the appropriate steps to take to keep him or her safe from injury or damage caused by prolonged seizures.